Pediatric

Pediatric

Astrid Lindgren Children’s hospital, our main partner in pediatrics, offers exclusive specialist care of highest international standard for children and teenagers (up to 18 years of age). For international patients the following high-profile areas of pediatric care is available:

Pediatric Surgery

The Department of Pediatric Surgery at Karolinska University Hospital is one of the major academic pediatric surgical centers in Sweden. In collaboration with the Karolinska Institute clinical and experimental research are conducted at the highest international level. Astrid Lindgren Children’s Hospital is a part of several research networks for pediatric surgery and urology.

The center’s main focus is on congenital malformations of the gastrointestinal tract and the urogenital system. Outpatients are offered clinic visits for second opinions.

  • Surgical procedures can be provided for anorectal malformations at our Pediatric Colorectal Center.
  • The multidisciplinary team for disorders regarding sexual development offers diagnostic work-ups concentrated in a 3- to 4-day period. If necessary, surgical management can be provided.
  • A specialized multidisciplinary team handles vascular malformations. The team provides diagnosis and treatment of a broad spectrum of vascular anomalies as well as vascular tumors.

Orthopedics

The Division of Pediatric Orthopedics offers a substantial number of highly specialized treatments for various congenital and acquired deformities of the skeletal system. The unit has expertise in neuro-orthopedics, orthopedics, rheumatology, biomechanics and physical therapy/rehabilitation therapy. Research and development of methods are also included in the clinic’s expertise.

Treatments are offered for orthopedic conditions that includes:

  • Suspected hip instability in newborns and
  • Various foot problems, particularly clubfoot

Diagnosis and treatment of deformities and movement disabilities affecting children with neuromuscular conditions, is also offered, such as:

  • Cerebral palsy
  • Spina bifida
  • Various muscular disorders

The unit also includes a motor skills lab for walking analysis in order to facilitate the diagnosis and choice of treatment. Walking and motion analysis also creates conditions for documentation of patient status before and after treatment, and to evaluate and ensure the outcome.

Oncology

The Department of Pediatric Oncology provides diagnosis, treatment and follow-up on children with tumors and blood diseases. The team include oncologists, specialist nurses, consultants from other specialties, dieticians, physiotherapists and occupational therapists.

Hematology immunology and stem cell transplantation

The Department of Pediatric Surgery at Karolinska University Hospital is the largest in the Nordic region for research and treatment of primarily non-malignant blood diseases and immune deficiencies, especially children requiring stem cell transplantation. The transplant is performed at the Center for Allogeneic Stem Cell Transplantation (CAST).

Providing quality care requires a close collaboration from multidisciplinary teams, therefore the clinic collaborates with the Center for Allogeneic Stem Cell Transplantation (CAST), adult hematology, clinical immunology and transfusion medicine, and many other departments at the Astrid Lindgren Children’s Hospital.

Treatment of blood diseases and immune deficiency diseases in children may apply to children with chronic blood transfusion needs or thrombocytopenia due to congenital or acquired diseases or bone marrow failure.

The unit also treats children with tumors using high-dose chemotherapy and stem cell reproduction (autologous stem cell transplantation, ASCT), as well as children with severe aplastic anemia or severe congenital immune deficiencies.

The largest group of patients is treated with stem cell transplantation from donors that are siblings or unrelated. The unit is responsible for the investigation, aftercare and long-term follow-up. The transplant is performed at the Center for Allogeneic Stem Cell Transplantation (CAST). More than half of the patients are from other parts of the country or from abroad and stay in the ward known as the Ronald McDonald House.

Hepatology

At Astrid Lindgren Children’s Hospital children with diseases of the gastrointestinal tract, liver, biliary tract and pancreas are examined and treated. Many of these conditions are rare and serious and can sometimes require long-term inpatient examination and treatment. The highly specialized staff at Astrid Lindgren Children’s Hospital offer comprehensive, multidisciplinary diagnoses and cutting-edge treatment options and procedures.

We use state-of-the-art endoscopic equipment and minimally invasive techniques to perform minimal invasive procedures with maximal results.

The Karolinska Center for Rare Diseases

Rare diseases are often genetic and have a comprehensive picture of symptoms that are life-threatening or can lead to life-long disability. Because of the diversity and the large number of rare diseases, it is impossible for an individual doctor to have complete knowledge of all these conditions. That’s where The Karolinska Center for Rare Diseases provides a unique competence.

The clinic has great knowledge regarding rare disorders that create symptoms during childhood. Both diagnosis and treatment is performed by a number of experts in rare diseases from various disciplines. Second opinions are provided for patients who are unable to get satisfactory diagnoses and treatment guidelines in their homeland.

Different countries have different definitions when it comes to rare diseases. Within the EU, a rare disease is defined as an illness or injury with profound disability that affects less than 1 in 2000 people. Sweden uses a slightly narrower definition. It is considered to be a rare diagnosis if it occurs in less than 1 in 10 000 people. More than 80 percent of rare diseases has genetic origin, and many are chronic and life-threatening. It is estimated that there are between 6,000-8,000 rare diseases, affecting 6-8 percent of the EU population, or about 27 to 36 million people.

Tall stature treatment

Extreme tall stature is commonly defined as an adult height exceeding 185 cm in women and 200 cm in men. Most commonly tall stature is familiar although in some cases an underlying disorder may exist. The workup of tall stature aims to diagnose any underlying disorder and to predict the remaining growth potential and adult height. In selected cases, treatment can be offered to limit the remaining growth.

Karolinska University Hospital offer a minimal invasive surgery where the knee growth plates are mechanically destroyed on both sides. The surgeon will make two approx. 5 mm skin incisions on the outer side of each knee. The surgery is performed under general anaesthesia, takes approximately 1 hour, and the patient usually stays 1-2 days in the hospital. No restrictions apply when it comes to walking after the surgery.

Eligibility: To be eligible for treatment, the following criteria must be fulfilled:

  1. Strong desire by the patient to undergo treatment
  2. Adult height prediction of at least 185 cm in girls and 200 cm in boys
  3. At least 8 cm remaining growth

The first patient was treated in 1997. The outcome has been carefully monitored and published. So far no long-term negative side effects have been reported, e.g. no leg length discrepancy or angulation (Benyi et al, Int J Ped Endocrinol. 2010:740629).  By average, the surgery will reduce the predicted remaining growth by one third. Only leg growth will be stopped/slowed down, but as most tall patients have relatively long legs, arm/leg disproportionality is almost never a problem.

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